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  • Home health care services in collaboration with the specialist health care services

    Introduction

    According to Report No. 47 to the Storting – the Coordination Reform (hereafter called the reform) – improved coordination is one of the health care services’ most important areas of development. Coordination is emphasised as central to achieving the goal of continuous and cohesive health services to the patients (1).  The reform describes the coordination of specialist and municipal health care services as particularly challenging. Studies show, a.o., that the follow-up of patients in the transition from hospital to home health care has proven particularly difficult (2-9). In order to establish a more cohesive patient trajectory many municipalities have introduced various forms of the purchaser-provider model. Studies show, however, that collaboration between health personnel is unsystematic and incomplete with regard to the assessment of patients’ level of functioning and need of assistance, and that documentation accompanying patients is unsatisfactory (3-8). The reform measures introduced in January 2012 thus have as their goal to improve collaboration between the actors. In this article we present a study of how nurses in home health care services experience collaborationwith health personnel in the specialist health care services two and a half years after the introduction of the reform. We shed light on the collaboration between the actors by focusing on the challenges that arise when patients are discharged from hospital and transferred to home health care services. The purpose of the article is to develop knowledge regarding challenges that arise in the collaboration and how such challenges are met.

     

    Background

    Coordination is “ health care services’ ability to divide tasks between services in order to reach a common, agreed-upon goal, and the ability to perform the tasks in a coordinated and rational manner “ (1 p.13). According to Orvik (10), such collaboration obligates and carries a legal and ethical imperative entailing that the actors shall act jointly in concrete situationsso that patients and family experience continuity in services and measures.  Coordination thus demands mutual adjustment of the parties’ tasks, a common understanding of the situation and of the necessity for collaboration. Collaboration and cooperation are central to coordination (2,10). Collaboration is described as a positive attitude between actors leading to informal contact without a necessary presence of a strong degree of obligation to concrete actions (10). Coordination is about formalising measures, either within the individual organisation or between organisations, in order to solve certain tasks and realise common goals.  Coordination demands decisions at a system level (10).

    In Report No. 47 to the Storting (1) the challenges relating to the collaboration between the specialist health care services and the municipalities are attributed, a.o., to that health care providers and municipalities are regulated by different laws and have different payment structures and incentives.  Further, the aim of the specialist health care services is curative while the municipal health care services emphasise the patient’s level of functioning and coping ability. The report to the Storting also lists as a coordination problem that patients ready to be discharged occupy a significant number of bed days in hospitals. The reform has therefore had as a goal the implementation of system measures to support collaboration when the patient’s need of services is at odds with administrative levels or organisational boundaries. The reform’s major move has been to transfer tasks and responsibility from specialist health care services to municipal health care services. Measures implemented to meet the shifting of tasks and responsibilities to the municipalities are among others: Requirement of “collaboration agreements” between the parties, municipal payment for bed days in hospital for patients who are defined as ready for discharge, and the creation of positions for coordinators of collaboration in the regional health authorities (1,11,12).

    Coordination statistics for 2013-2014 show that the incentive of municipal payment has contributed to a significant reduction in the number of bed days for patients ready for discharge (13,14).  The number of patients that the municipalities must serve has risen, and the patients discharged are sicker than before (13-21). The municipalities’ new responsibilities are thus, to a great extent, about treatment related tasks and caring for patients in a very vulnerable phase (13,16,17,20). This entails an increased pressure on municipal services, and home health care services in particular, especially in the municipalities that have a shortage of short-term placements (16,18). Organising the services according to a purchaser-provider model also appears to limit the possibilities for meeting older patients’ needs for treatment and care (15). Concern for whether the municipal follow-up services of patients are satisfactory has been voiced (13,16,17,19,20). It remains unclear whether the coordination of hospital and municipalities regarding the individual patient has improved after the implementation of the reform measures (13,19,29).

     

    Method and material

    In line with the purpose of the study, we chose a qualitative design (22,23). The snowball method was used to gain access to informants with experience from collaborating with actors in the specialist care services. Through social networks we gained information on potential informants whom we contacted. These informants directed us to other nurses in the home health care services who collaborate with the specialist health care services. We used semi-structured in-depth interviews as data collection method (22,23). Seven nurses distributed on one rural municipality and one urban municipality within the same regional health authority were interviewed. Four nurses worked with providing services directly to the patients.  Three nurses were administrative leaders responsible for planning the services and receiving patients from the hospital. We chose to interview nurses with both clinical and administrative responsibilities. We assumed that with a variety of responsibilities in the home health care services they might have a variety of experiences on collaborating with the specialist health services. In the interviews we emphasised bringing out the nurses’ descriptions of how the collaboration with the hospitals, regarding patients ready to be discharged into home health care services, works after the implementation of the reform. To ensure the quality of the data we frequently rephrased the informants’ statements as questions. This was done to ensure that we had understood what the informants wanted to communicate (23). The interviews were carried out during the summer of 2014 by two researchers, and lasted from one to one and a half hours. The interviews were recorded and transcribed.

     

    Analysis

    The data were analysed and interpreted using a phenomenological hermeneutic approach (23). We performed meaning condensation and generated units of meaning; this was not a linear process, but an interpretive meandering between raw data, potential sub-themes, and themes. Quotes regarding challenges in the collaboration were first marked and possible sub-themes noted in the margins. Next, we made a summary of each individual interview, quotes were gathered in sub-themes, and potential themes were developed in parallel. Then sub-themes and themes from all the summaries were viewed crosswise. This entailed bringing out, through analysis, common sub-themes and themes and removing superfluous material. It emerged early on that collaboration on cancer patient was a theme that stood out, as this collaboration seemed to work quite well. Collaboration on other patients who were to be transferred to home health services was, however, described as problematic. The problem related to the actors’ differences in perspectives on what to emphasise in such collaboration. Home health nurses also consider it a problem that they have limited power and influence in the coordination effort and that there is limited collaboration and flow of information between the actors. The table below illustrates the analysis from sub-theme to theme.

                After developing the themes we analysed the interviews one more time to ensure the validity of the study (23). The analysis of the interviews showed that the nurses’ experiences with collaborating with actors in the specialist health care services were more or less identical. Consequently, we do not distinguish between informants with administrative and clinical responsibilities in the presentation of the data and in the discussion.

     

    Table 1

     

    Ethical Considerations

    An information memo and invitation to participate in the project were sent to the administration of the home health care services in two municipalities who then recruited informants. The participants gave written informed consent and they were notified that they could withdraw from the study at any time, which nobody did. The study was approved by The Norwegian Centre for Research Data. Personal, identifiable information was anonymised in the transcription. The data are stored in accordance with current regulations.

     

    Results

    In the following, the thematic findings of the study are presented, and sub-themes appear implicitly through the informants’ statements.

     

    Cancer care works

    According to the nurses, collaboration with the hospital works well in the case of cancer patients. The nurses state that the hospital has a professionally strong team that is easy to contact, and that they “think about everything” when a patient is discharged into the care of home health services. One informant explains why this works: “It is everything. From the ordering of supplies to all the equipment we are expected to need for medication. When we have general questions they are very easy to reach and very service minded. Both to us and the patients.”

                Another informant says: “The collaboration depends on the people at the hospital knowing the municipality the patient is going into, and on whom we meet (in the specialist health care services). Palliation has worked really well.” Here the nurses emphasise that a good flow of information is crucial to the delivery of good services. They further express that collaboration presupposes knowledge and understanding of the situation of the other.

     

    Different perspectives

    According to the nurses, collaboration with the hospital on patients that do not have cancer and who are about to be transferred to home health services represents a problem.  Data show that the actors have different perspectives on what to emphasise in the collaboration regarding the needs and situation of the patient: “Collaboration starts in the system you work in.  You may take a different view of collaboration depending on where you work […]. My perspective is that we work towards the user living at home. But when it is a matter of a user going home, it is more like they see that user in a medical perspective”.

     According to the informants, actors in the specialist health care services have more of a medical perspective on the needs of the patients than the nurses, who have a more contextual understanding of the patient’s needs. Hospital personnel, for instance, is more concerned with the medical treatment of the patient’s illness, while the home health nurses say they focus more on the patient’s level of functioning and home situation. The differences in perspectives may make collaboration difficult, as the actors emphasise different aspects of the patient’s needs and situation. According to the informants, the content of the collaboration is also influenced by the health care services having a pressured workday and that it is “a rat race”. The informants say that everyone protects themselves and shifts the responsibility to others whenever possible.

     

    Limited power and influence

    The nurses describe an experience of limited power and influence in the collaboration. They say that the hospital physicians define when a patient is to be transferred to the municipality, and this may constitute a problem for the home health services.  One informant says that: “We certainly do not experience having all the power in the world. We are generally told that he or she is coming home - and this is what you have to do. Period. Either from the hospital or through a decision from the administrative office, which may not be totally in line, to put it that way … “

    Another informant states that: “We simply have to accept the patients”. The informants say here that they have to accommodate the patients without the care services being adapted to the needs of the patient. They further say that the patients are being transferred to the municipalities when the hospital physicians have assessed the patient’s medical situation. The patients, however, are still in need of treatment and care from home health services. According to the informants this has resulted in a greater workload and increased professional demands on the nurses in the home health services. This has also resulted in more frequent readmissions and patients being moved back and forth more now than earlier. The informants say that they have a coordination agreement with the hospital stating that patients shall not be returned to their homes between 14:00 hours on Fridays and 08:00 hours on Mondays. According to the nurses this worked well at first; now, however, the hospital frequently breaks the agreement and patients are transferred to the municipality and may arrive home late Friday nights and also on weekends.The nurses also say that they are rarely heard when they try to communicate with the hospital. They may, for instance. give information innumerable times on the work situation of home health care services to the hospital, without the actors in the hospital acting in accordance with the information. One informant says: “We feel like we are fighting against a superior power”.

    Another informant says: “What frequently happens is that we receive the patient, holding a prescription – and no medication. It just doesn’t seem to help however many times we say that we do not have a pharmacy here in … and we have no medication, we don’t have all that many supplies. We just don’t have anything stored. So we frequently receive patients that are sent home without the things they need.”

    The nurses further say that the time the home health care services need to plan the arrival of a new patient is rarely taken into consideration. According to the informants the need for planning relates, a. o., to that the home health care services do not have any supply of equipment or medication. The workforce is limited in the afternoons and on weekends, and days are unpredictable. Nurses also say that physicians and nurses both may promise patients services from home health services without asking home health services whether they will be able to deliver such services. One nurse puts it like this: “Then the doctor or nurse at hospital tells the patient: “Now you will receive home health care x 4, you need that”. And they have no idea about how the home is adapted. What they have done before. We have sent an admission report, but that is just a rough mapping. And then the patient is told that now you’ll get home health care x 4, and they will meet you, and then this is just not real.”

    According to the informants, the hospital’s promises create expectations in the patients that home health services cannot always meet. The nurses say that they frequently know the patients and are able solve such situations through dialogues in which expectations are lowered and the patients are “secured”.

     

    Limited cooperation and flow of information

    According to the nurses, collaboration between actors is limited. The informants say that home health services do not have regular, formal arenas for collaboration with the hospital, which they did have prior to the reform. One informant says: “We attend coordination meetings at the hospital much less frequently now […]. I hear many people at the administrative office say that the coordination meetings at the hospital are a waste of time, for there is nobody there who knows the patients. […] We have said that we want to attend and they say they will include us, but there is no change”.

    Home health services have an agreement about a “coordination council” with the hospital twice a year, but mostly information is distributed through the administrative office. The informants describe this as a disadvantage because important information gets lost, such as information on the functional level of the patient.

    They further say that patients are sent home without discharge summaries and medication lists, which makes the planning of the patients’ services difficult. At times the papers are sent to the administrative office, and then home health services get the papers the day after the patient has arrived home. They may also get incomplete discharge summaries. One informant says: “If we are lucky enough to get anything at all, the discharge summaries are incomplete. I have contacted the hospital and pointed out something in the discharge summary and asked specific questions and I am just told that ‘this is not a complete discharge summary – you cannot use it. You have to wait for a complete version’. And that may arrive in a week, so…”.

    The nurses say that the limited coordination of patient information makes them uncertain and as a result they double-check the incomplete information they receive. This leads to many telephone calls, extra work, and a stressful situation. The greatest challenge is, according to one nurse: “… to find the right people with the right expertise when I need it”. The nurses say that the actors at the hospital are friendly when called, but they frequently get hold of a nurse who just started a shift and does not know the patient. One nurse says that the absence of medication lists once forced her to make decisions regarding medication, and this is the physician’s responsibility

     

    Discussion

    The findings show that collaboration on cancer patients works well. The main impression is, however, that collaboration between hospital health care personnel and home health care services is tainted by an organisational unequal distribution of formal power between the various actors. Data further suggest that there is no common understanding established regarding what is important to collaborate on. This may, a.o., relate to the actors having limited knowledge about each others’ work situation. 

    The actors’ formal power is vested in the laws and regulations that regulate the coordination of the transfers of patients from specialist to municipal health care services (1,11). Power may, according to Hernes (24), be described as the actors’ capacity to realise their own interests. Power is here considered a relational concept (25). The unequal distribution of power in the collaboration between hospital personnel and home health care services is anchored in formal organisational structures. The hospital physicians have formal power to define when patients shall be transferred to the municipalities. Home health care services state that they do not have any choice but to “simply accept” patients that are sent home. Our study shows, in line with other studies, that patients are discharged earlier, are sicker, and need more treatment than before (16,17,19-20,26).  Based on Hernes’ perspective on power, early discharge of patients may be understood as a case of the actors in the specialist health services realising their own organization’s interests and the intention of the reform that patients be sent home as soon as possible. The formal power distribution in the relation between actors does, however, seem to limit collaboration.  This is because the physicians in the specialist health services can make decisions that influence the workday of the home health services, without involving them. Formalised measures that bind actors morally and legally to collaboration, may, to a certain degree, even out the differences in power. The study shows, however, that the coordinating council, which may be considered as a formalised measure for collaboration, hardly functions according to the intention.

    The collaborative challenges also emerge when nurses need to seek informal contact with actors in the specialist health care services and experience rarely being heard. The interaction between the actors reveal limited collaboration, because, according to Orvik (10), collaboration rests on the actors having a positive attitude, leaving them room to establish informal contact.  Not being heard may also give the nurses in the home health care services a feeling of powerlessness (24). Important premises for collaboration, such as mutual responsibility and equal worth, may thus be under threat (10).

     The study further shows that hospital personnel promises the patients more extensive services than home health services can deliver, and that they break collaboration agreements. Such choices of actions may be seen in the context of the informants describing the health services as “a rat race” and that the actors first and foremost think about own “workload”. This entails that the actors to a limited extent solve tasks together, and the intentions of the coordination reform to “ensure flow in work processes so that patients experience cohesion in services and measures” (10, p.210), seem to suffer. The formal power structure appears to a limited degree to further a collaboration that obligates the actors, leaving room for shifting responsibility from the specialist services to the home health services.

    The study further shows that the actors have different perspectives on what is collaboration. Differences in perspectives may be an expression of the actors only to a limited degree having established a common understanding of what collaboration entails, and what is important to collaborate on. Such challenges were also described by others before the implementation of the reform (1,3-5). That the actors involved act based on different perspectives may explain the informants’ experiences of incomplete information frequently accompanying the patient. Limited flow of information may also be understood as an expression of the formal organisational structure to a limited degree opening for exchange of knowledge between the actors. The very organisation of the work in the health care services as shifts also makes it difficult to get hold of the actors who have the relevant patient information. The way the health care services are organised may thus reduce the possibilities for collaboration between actors, and the preconditions for establishing such collaboration may thus be reduced (10). The study thus suggests that establishing a common understanding of the significance and content of collaboration across professions and organisational levels remains a challenge. According to Orvik, a common understanding of both collaboration and the current situation is necessary in order to achieve a mutual adjustment of work tasks (10).

    The nurses say that the collaboration on cancer patients is a success, a. o. because the discharge processes are characterised by a good flow of information and dialogue between actors. The data also suggest that the actors in the hospital know that the home health care services have limited medical equipment and make sure that what patients need is available at discharge. This may indicate that the actors have a common understanding of what to collaborate on and how. A possible explanation for the actors having established a common understanding may be that cancer is a serious illness that brings forth existential questions that also touch the actors involved. At the same time, research shows that cancer is ranked high in the prestige hierarchy of disease diagnoses (27). This may be significant in the follow-up of patients when discharged from hospital and thus also for the collaboration between actors.

    This study has contributed to shedding light on the way seven nurses from two different municipalities describe collaboration with actors in one hospital. The findings are thus not statistically generalisable. The nurses emphasise that the collaboration regarding cancer patients works well, whereas collaboration on patients with other illnesses remains a challenge.  They experience the collaboration as characterised by an unequal distribution of power, and that involved actors have a different understanding of what collaboration entails and on what they are supposed to collaborate.

     

    Conclusion

    The study suggests that there is a need for both inter- and intra-organisational changes in order to improve collaboration. One important measure may be to establish a common collaborative arena, which would be in line with Report No 26 (2014-2015) to the Storting (28). This will likely further both the exchange of knowledge and contribute to increased understanding of the other’s work situation in collaboration on the care for the individual patient within the given framework.  Organisational changes alone will probably not, however, solve the collaborative challenges (2,28). Actors need both the willingness and the capacity to collaborate to make coordination possible (10,28). Knowledge, willingness and capacity seem to characterise the coordination of cancer patients. Studying successful collaboration may yield valuable knowledge that may be used to improve collaboration within less successful areas.  There is also a need for further research to clarify what is to be coordinated by the actors, how to create willingness to collaborate, and how to balance power relations between the actors. In order to explore the mentioned research topics, developing theories that contextualise what is relational in collaboration may be useful.

     

    References

    1. St.meld. 47. Samhandlingsreformen (2008-2009). Rett behandling – på rett sted – til rett tid. Helse- og omsorgsdepartementet. Oslo. 2009.
    2. Melby L, Tjora A. Samhandlingens mange ansikter. I: Melby L. Tjora A. (red). Samhandling for helse. Kunnskap, kommunikasjons og teknologi i helsetjenesten. Gyldendal Akademisk. Oslo. 2013.
    3. Hellesø R, Fagermoen M-S. Cultural diversity between hospital and community nurses: implications for continuity of care. Journal of Integrated Care 2010;10;1–9.
    4. Hellesø R, Melby L. Forhandlinger og samspill i utskrivningsplanleggingen av pasienter på sykehus. I. Melby L. Tjora A. (red). Samhandling for helse. Kunnskap, kommunikasjons og teknologi i helsetjenesten. Gyldendal Akademisk. Oslo. 2013.
    5. Olsen RM. Informasjonsutveksling mellom sykepleiere i hjemmesykepleie og sykehus ved overføring av eldre pasienter. (Doktoravhandling). Kopieringen Mittuniversitetet, Sundsvall. 2013 
    6. Tingvoll WA, Sæterstrand T, Fredriksen ST. Kompetanse i tiltakskjeden–avdelingslederes erfaringer om utskrivninger av eldre pasienter fra sykehus. Vård i Norden 2010; 30:29–33.
    7. Danielsen BV, Fjær S. Erfaringer med å overføre syke eldre pasienter fra sykehus til kommune. Sykepleien Forskning 2010; 5:1:28–34.
    8. Groene RO, Orrego C, Sunol R, Barach P, Groene O. «It›s like two worlds apart»: an analysis of vulnerable patient handover practices at discharge from hospital. BMJ quality & safety. 2012;21 Suppl 1:67–75.
    9. Debesay J, Harslof I, Rechel B, Vike H. Dispensing emotions: Norwegian community nurses› handling of diversity in a changing organizational context. Social science & medicine. 2014; 119:74-80.
    10. Orvik A. Organisatorisk kompetanse. Innføring i profesjonskunnskap og klinisk ledelse. Cappelen Damm Akademisk. Oslo. 2014.
    11. Helsedirektoratet. Samhandlingsavtaler mellom kommuner og helseforetak (10.02.2015). https://helsedirektoratet.no/samhandlingsreformen/samarbeidsavtaler-mellom-kommuner-og-helseforetak 
    12. Helse- og omsorgsdepartementet. Forskrift om kommunal betaling for utskrivningsklare pasienter 18.11.2011. 
    13. Helsedirektoratet. Samhandlingsstatistikk 2013–2014. (07.05.2015) http://www.helsedirektoratet.no
    14. Hermansen Å, Grødem AS. Redusert liggetid blant de eldste. Sykepleien Forskning 2015; 10:24-32.
    15. Kassah BLL*, Tingvoll WA*, Dreyer Fredriksen ST. Samhandling–sykepleieledere og bestiller-utførerenhet. Geriatrisk sykepleie 2014; 3:26–33.
    16. Abelsen B, Gaski M, Nødland SI, Stephansen A. Samhandlingsreformens konsekvenser for det kommunale pleie- og omsorgstilbudet. IRIS Rapport 382/2014. (07.05.2015) http://www.iris.no/forskning/samfunn/politisk-organisering-og-styring/helse-og-omsorg-samhandlingsreformen
    17. Grimsmo, A. Hvordan har kommunene løst utfordringene med utskrivningsklare pasienter? Sykepleien Forskning 2013; 8:148–155.
    18. Norheim KH, Thoresen L. Sykepleiekompetanse i hjemmesykepleien–på rett sted til rett tid? Sykepleien Forskning 2015; 10:14–22.
    19. Kassah BLL, Tingvoll W-A, Tønnessen S. Samhandlingsreformen–utfordringer, løsninger og implikasjoner. I: Kassah, BLL, Tingvoll WA, Kassah AK (red). Samhandlingsreformen under lupen. Kvalitet, organisering og makt i helse- og omsorgstjenestene. Fagbokforlaget Vigmostad & Bjørke AS. Bergen. 2014. 
    20. Gautun H, Syse A. Samhandlingsreformen. Hvordan tar de kommunale helse- og omsorgstjenestene imot det økte antallet pasienter som skrives ut fra sykehusene? Rapport nr. 8/13. NOVA. 2013.
    21. Sæterstrand TM, Holm SG, Brinchmann BS. Hjemmesykepleiepraksis: Hvordan ny organisering av helsetjenesten påvirker sykepleiepraksis. Klinisk Sygepleje 2015:29:1:4–16.
    22. Patton MQ. Qualitative research and evaluation methods. Sage Publications. Thousand Oaks. Calif. 2002. 
    23. Kvale, S. InterViews. An introduction to qualitative research interviewing. Sage pub. Inc. Thousand Oaks. Calif. 1997.
    24. Hernes, G. Makt og avmakt. Universitetsforlaget. Oslo. 1975/1997.
    25. Englestad, F. Hva er makt. Universitetsforlaget. Oslo. 2009.
    26. Kassah BLL, Jenssen GM, Tingvoll WA. Informasjonsflyt i omsorgstjenesten– bruk av elektronisk pasientjournal. I: Kassah, BLL, Tingvoll WA, Kassah AK (red). Samhandlingsreformen under lupen. Kvalitet, organisering og makt i helse- og omsorgstjenestene. Fagbokforlaget Vigmostad & Bjørke AS. Bergen. 2014. 
    27. Album D, Westin S. Do diseases have a prestisje hierarchy? A survey among physicians and medical students. Social science and medicine 2008:66:1; 182–188.
    28. St.meld. 26. Fremtidens primærhelsetjeneste – nærhet og helhet (2014-2015). Helse- og omsorgsdepartementet. Oslo. 2015.

    Different perspectives on what to prioritise, characterise the cooperation.

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    English
    Sammendrag

    Bakgrunn: Samhandling mellom aktører i spesialist- og kommunehelsetjenesten om pasienter som skrives ut fra sykehus har vært en utfordring. Ett av målene med tiltakene i samhandlingsreformen er at denne samhandlingen skal bedres. 

    Hensikt: I denne studien har vi sett på samhandlingen mellom aktørene i spesialist- og kommunehelsetjenesten. Hensikten var å få kunnskap om hvordan sykepleierne i hjemmesykepleien opplever at samhandlingen fungerer når pasienter skrives ut fra sykehus, to og et halvt år etter innføringen av samhandlingsreformen. 
    Metode: En kvalitativ studie med individuelle dybdeintervju av sju sykepleiere i hjemmesykepleien ble gjennomført sommeren 2014. Datamateriale ble analysert og fortolket etter fenomenologisk-hermeneutisk metode.

    Resultat: Sykepleierne beskriver at samhandlingen om pasienter med kreft fungerer godt. Samhandlingen om andre pasienter er imidlertid utfordrende. Samhandlingen er preget av ulike perspektiver på hva som skal tillegges vekt. Sykepleierne i hjemmesykepleien opplever også å ha begrenset makt og innflytelse samt at informasjonsflyten er begrenset. 

    Konklusjon: Samhandlingen mellom helsepersonell på sykehus og hjemmesykepleie om pasienter som skrives ut fra sykehus fungerer ikke etter hensikten. Dette ser ut til å ha sammenheng med skjev maktfordeling mellom 
    aktørene og at det ikke er etablert en felles forståelse av hva de skal samhandle om, og hvordan. Bedring krever organisatoriske endringer slik at maktrelasjonen mellom aktørene balanseres. I tillegg må aktørene utvikle kunnskap, vilje og evne til å samarbeide på 
    tvers av organisatoriske enheter. 

    Hjemmesykepleier åpner et medisinskap
  • A survey of school nurse staffing in the school health services

     

    Introduction

    In its development strategy for child health clinics and school health services, the Norwegian Directory of Health has worked out a proposal for a staffing norm (1). The proposed minimum norm for school nurse coverage in relation to students is based on a calculation of the time needed to perform professionally recommended tasks in the school health services. The recommended norm per full-time school nurse position is 300 students in primary schools, 550 in lower secondary schools and 800 in upper secondary schools.

    The law states that all municipalities shall have “school health services in schools” (2). The regulations and guidelines for the child health clinic and school health services are developed in accordance with knowledge-based practice (3). A professionally based school health service may thus be understood as a service where the content is in accordance with such regulations and guidelines. The purpose of the service is to further psychical and physical health, good social and environmental conditions, and to prevent disease and injuries (4). The preparatory work for the Health and Care Services Act explores this intention. The service shall be a “drop-in”, “low-threshold service” in schools, where the school children may receive early assistance at the lowest possible level (5). Nationwide controls of the school health services showed that availability was low and varied considerably from place to place (6). Earlier, smaller, surveys from Oslo’s boroughs and from the ten largest cities in Norway show the same results.  Staffing was far below the recommended norm in many locations (7-9).

    In a knowledge review of school health services no systematic surveys were found dealing directly with staffing (10).  Searches in various data bases confirm that school health services in general and the staffing situation in particular have not been much researched globally.

    A few separate studies and other publications do exist that address staffing nationally and internationally: One American study reports that data on school health service staffing on a national level are essential for obtaining an overview of the resource effort in measures implemented by the school health services (11). The Norwegian Directorate of Health has pointed to the absence of such a national survey of staffing in the various part services, such as child health clinics, primary schools, lower secondary schools, upper secondary schools and health clinics for adolescents (1).

    The Norwegian Institute for Urban and Regional Research refers to a positive effect of adequate staffing in the child health clinics and school health services. The institute concludes that municipalities with adequate school nurse coverage show a reduction in child protection measures due to an earlier implementation of support measures (12).

    In several cross-sectional studies collaborating personnel in schools have been interviewed on the role of the school nurse (13-15). The results show that when school nurses are present in schools, the teachers’ time is freed to teach, and in some cases students and parents do not have to take time off to seek second line services. School nurses assess and deal with health related problems that get in the way of learning. In another study teachers express a wish for increased availability of school nurses in schools, as contributors to the social environment and to teaching (16).

    Baltag & Levi have analysed the effect of various organisational models for the health services for school children based on data from 37 European countries (17). The Norwegian model with a low-threshold service in schools is described as good in that it provides services equally to all students, is efficient and of economic value. Another qualitative study with comparative design studies the students’ access to health services and compares schools with school nurse present full time or part time (18). The study shows that the students more frequently make contact for consultations where the school nurse is present daily than where the school nurse is present twice a week.  The authors claim that this indicates an unmet need for health services in schools with low availability.

    The purpose of this study was to map school nurse staffing in individual schools in Norway at one point in time in the whole country, and evaluate this against recommended norm figures and presence. By analysing variations between school class levels, counties, school size and municipality size, we wished to assess whether the school nurse coverage in the school health services is dimensioned in such a way that the students have access to a professionally based low-threshold service.

     

    Method

    Design

    The simplest way of observing a number of observational units for comparison at one point in time is to perform a cross-sectional study (19,20). A cross-sectional study with electronic questionnaires was used to map health nurse staffing in school health services at one point in time in all counties.

     

    Sample

    The sample consisted of primary, lower secondary and upper secondary schools. In order to compare the number of students at each school with the norm figures for school nurse staffing (1), student figures were taken from the Primary schools’ information system (21) and Statistics Norway (SSB) (22).

     

    Inclusion criteria:

    Primary schools: 1.–7. Grades

    Lower secondary schools: 8.–10. Grades

    Public upper secondary schools: 1.–3. Grades

    Total number of students more than 40

     

    Exclusion criteria:

    Schools with a different categorization of students, such as 1.–4. grades, or 1.–10. grades, are excluded as norm figures are not calculated for such schools. Private high schools do not report total number of students to the SSB, and are thus excluded.

    In the smallest schools the norm figure may be met by having a school nurse present less frequently than every 14. day. Other issues than norm figures must in those cases be the basis of evaluating professionally justifiable availability of school health services. Schools with less than 40 students are consequently not included in the study.

    The sample, after the above selections, consists of 2350 schools from 340 of the nation’s 428 municipalities. Population figures from the included municipalities are provided by the SSB.

     

    Data collection

    The information collected has not been collected on a nationwide basis earlier. Adapted, electronic questionnaires were developed for each municipality. The questionnaire form contained an overview of relevant schools in the municipality in accordance with the inclusion criteria. For each school there was a space to fill in for the school nurse position percentage including meetings, and a space for comments. The questionnaire was sent to the leader for the school health services in each municipality on March 8th 2015. Updated e-mail lists were provided by the Kommuneforlaget [Municipal publishing house]. For the three largest cities the questionnaires were sent to the cities’ boroughs. The comments were read and the position percentage adjusted according to the comments.  Microsoft Access was used to send the questionnaires and for automatic registration of answers. The answers were checked using random testing and found to be correct. A reminder was sent to those who had not responded within the two weeks following the deadline.

     

    Categories

    School nurse coverage, defined as number of children per school nurse position, was analysed against school size and municipality size. School size was categorised in small, medium and large, divided into tertiles based on student figures at primary, lower secondary and upper secondary school levels respectively (primary school 0–143 students, 144–286 and 287–825, lower secondary school 0–232, 233–343 and 344–723 and upper secondary school 0–276, 277–572 and 573–2110). The municipalities, excluding Oslo, were categorised by population figures in small: = 5000, medium: 5000–10000 and large: =10000.

     

    Ethics

    Approved ethical guidelines based on the Helsinki Declaration (NEM 1992) were followed. The information collected in this study is available to each municipality’s inhabitants at, among other places, web sites. The study was reported to the Norwegian Social Science Data Services (NSD) 14.01.2015. The NSD responded that a formal application was not necessary, as no information appears that is in conflict with privacy protection guidelines. The data material in this study contains no singular mention of any person.

    In order to adhere to the principle of providing adequate information regarding the purpose of the study (20), the respondents were given detailed information on the purpose of the study when the electronic questionnaire was sent to the municipalities.

     

    Data analysis

    School nurse coverage was reported as median and interquartile range due to skewed data. The Kruskal-Wallis (non-parametric one way ANOVA) test was used to test whether school nurse coverage varies with school size or municipality size. Chi-square tests were used to examine variations between proportions in the various groups. The deviance from the norm was defined as the variation between recommended norm figure for school nurse staffing and de facto school nurse coverage. Percentage-wise school nurse understaffing in the nation was calculated by deviation from the norm/norm figures* 100 for primary schools, lower secondary schools and upper secondary schools respectively. IBM SPSS statistics 22 was used for statistical analyses. The level of significance was set at p<0.05.

     

    Results

    200 of 340 municipalities (58 per cent) responded to the survey. Students per school nurse figures were collected for 69.3 per cent (1629 of 2350) of the schools. The response rate for counties varied from 22.9–93.4 per cent (p<0.001) (see table 1).

    table 1

     

    Median coverage rate in primary schools was 675 (interquartile range 531 860) students per school nurse position. For the lower secondary school the median was 676 (531 824) and for upper secondary school 969 (751 1513). Norm figures for students per school nurse were met by 12.6 per cent of the schools. 2.5 per cent of the primary schools, 28.8 per cent of the lower secondary schools and 30.8 per cent of the upper secondary schools reported coverage rate that satisfied recommended norm figures. There were significant variations between counties with respect to students per school nurse in primary school (p<0.001), lower secondary school (p=0.005) and upper secondary school (p<0.001) (see figure 1).

    figure 1

     

    Median coverage rate varied according to municipality size. The number of children per school nurse position increased with the increase in municipality size at the primary and lower secondary school level. In the upper secondary schools there was no relation between degree of coverage and municipality size (see table 2).

    table 2

     

    The number of students per school nurse increased with the increase in school size at all levels (see table 3).

    table 3

     

    1.4 per cent of the nation’s schools had a school nurse present every day (figure 2). Median staffing percentage for school nurses in Norwegian schools was 40 per cent, corresponding to a nurse being present two days a week (interquartile range 20 50 per cent).  Divided by type of school, median presence for primary schools was 30 per cent (interquartile range 20 50 per cent), lower secondary schools 40 per cent (34 60 per cent) and upper secondary schools 40 per cent (20 80 per cent).

    figure 2

     

     

    Discussion

    The study showed that the deviation from recommended norm figures for school nurse coverage was substantial for all types of schools in Norway. The deviation was greatest in primary school, with no counties meeting the norm figure. Large schools were the furthest from the recommended norm and the school nurse staffing was lower the larger the municipality.

     

    Low threshold

    The low-threshold model with health services in school is assessed as being efficient and of economic value in a European context (18). This study shows that a full-time school nurse position in schools is very rare and that a 20-40 per cent position is common; this includes meeting time when the school nurse is not available to the students. The result causes some doubt as to whether we may call the school health services in Norway a low-threshold model where the students may get help early (5).

    Children and adolescents are spontaneous, also when deciding to get advice and guidance. Meeting a closed door may make them more reluctant to contact the nurse again and they may not get the help they need. This is supported by research that points to that low availability may result in an unmet need for health services (18).

    The Norwegian Ombudsman for Children and “voksne for barn” [“grown-ups for kids”] have talked to students from various schools in the country. The main advice from the students regarding the school health services is that there must be enough people working there and that the school nurse should be present every day (23,24). The students describe a low-threshold service as a place with no waiting lists, where someone is there when the students stop by. They also describe the service as being not all that available today: “’Come see me next week at two o’clock’ – that just doesn’t work, but that’s more or less what it’s like now” (23).

    The study shows why there is a need for a local adaptation to the norm. A small primary school with 40 students will be able to meet the norm figure by having a school nurse present one day every two weeks. The service cannot then be considered low-threshold, open-door service for the children. It will also, most likely, be easier to get an overview of the student body in smaller schools and this may facilitate the planning of any follow-up. This means that the municipalities must make a thorough assessment of whether they are providing an adequate service to the students at each individual school.

     

    Primary schools

    Nationwide the number of school nurses must be increased by 125 per cent to reach norm figures. This finding is in conflict with a policy of early intervention, more prevention and a low-threshold service where people live (25-27). If problems are not dealt with when the child is in need of help, the challenges may increase and become needlessly large. Any measures may in such cases have to be much more extensive and the consequences more serious when help is late in arriving. Young adults with experience from child protection services, psychic health services, hospitals and correctional care report experiences of help arriving too late (28). Helmers and Dolonen carried out a survey among school nurses. The nurses reported that they due to time pressure were unable to do a professional job (29,30). They had to turn away distraught children at the door; they were too late in submitting reports to the child protection services and were unable to follow up children and families that they knew needed help. Being turned away, meeting a closed door, delays the implementation of necessary measures. This may have unfortunate consequences for the students’ health and care situation. Children and adolescents, teachers and parents, have in many cases not much of a chance to collaborate on the students’ wellbeing and learning because the school nurse is not present.

    Small and medium sized municipalities were closer to the recommended norm figures for school nurse staffing in primary school than larger municipalities. This finding may be explained by there being more small schools in the smaller municipalities.

     

    Lower and upper secondary schools

    In order to reach the norm figures for school nurse staffing in lower secondary school the increase must be 34.4 per cent and for upper secondary school 21.1 per cent. Around a third of the counties were, however, close to the norm figure with regard to lower and upper secondary schools. Adolescents do to a greater extent communicate their own need for services than do smaller children. Ungdomsråd i Norge [Norwegian Youth Council] has had school health services on the agenda for several years. This was also marked by a national demonstration in spring 2014 when 600 young people met in front of the Storting [Parliament] demanding more school nurses (29). In Akershus the county politicians have approved an increase in staffing in the upper secondary schools, and at many of the county’s schools the school nurse is present all days (31).

    The dispersion between counties with regard to the presence of school nurses in upper secondary schools was substantial.  This may be explained by that the tasks, according to rules and regulations, are less specified there than in primary and lower secondary schools, where more tasks come under the heading “must-tasks” when it is a question of priorities.

    Vaccination is one example of a “must-task” under the heading “prevent disease and injuries” (4). Vaccines are high priority, requested by the population, follow a recommended programme, and statistics on coverage rate are collected nationally. This most likely contributes to good vaccination coverage (32). In upper secondary school the school nurse shall “promote psychic and physical health” and “promote good social and environmental conditions” (4). How this should be done is not as concretely described as in the vaccination programme. The service shall nevertheless keep high professional standards and be in accordance with knowledge-based practice (3).

    The proportion of immigrants in the population is increasing. Adolescents with immigrant background do to a lesser degree seek out the general health services, whereas they do use the school health services where these are available.  This was reported in the adolescent part of the Oslo health study (UNGHUBRO). Here the questions addressed health habits, physical and psychological ailments, and disease (33). The study was carried out over several years and was a forerunner of the population health profiles (34). Lien pointed out in his analysis of the data that “immigrant adolescents do not need their own psychiatric service, but rather that the school health services are maintained as a low threshold service, particularly in upper secondary schools” (35). This train of thought addresses the notion that it is frequently better to deal with problems at the lowest possible professionally justifiable care level (LEON).  Health promotion and preventative work should be performed in close proximity to the home environment (36,37).

    There is little knowledge available on the effect of measures in the school health services. There is a need for more research in this field in order to understand relations between health, wellbeing and learning among children and adolescents. Basic data, such as this national survey of school nurse staffing in the individual school, contribute to visualising these relations. It will, however, be useful to gain knowledge on what school nurses do in schools with high coverage compared to in schools with lower coverage. What concretely does the presence of the school nurse mean to students and collaborating parties?

    There is bipartisan agreement on a strengthening of health station and school health services. Yearly national reporting would contribute to ensuring that policy intentions are followed up by the municipalities (25 27). This study indicates that there is a need for earmarking of funds and an approved minimum staffing, the way the Ombudsman for Children and Djupedalutvalget propose (23,40). Such a strengthening will enable a desired increase in staffing and help give children and adolescents countrywide a low-threshold service in school (5).

    This is the first study to map school nurse coverage at individual schools in Norway, and evaluate this against recommended norm figures and presence. One of the strengths of this study is the high response rate (69.3 per cent). The total sample size is considerable even in the three counties with a response rate below 50 per cent. High response rates reduce potential sampling errors and increase the probability of reliability of the findings. There is, however, great variation among the counties, and we do not have data on what distinguishes those who responded from those who did not in each individual county.  To a certain extent this weakens the generalizability of the study. The highest response rate of one county is 93.4 per cent. It is known that this county has had a particular emphasis on school nurses in upper secondary schools and this may have led to a higher staffing level compared to other counties. The deviation from the norm figures for school nurse staffing is the least in this county. This may, however, make this study over-estimate the figures for school nurse staffing nationally.

    One limitation of the study is that the survey was done at one point in time and thus says nothing about the stability of the data over time. Measuring the coverage at several points in time would have yielded a more robust picture of the situation.  The study does not consider any other factors than staffing which may be of importance in a professionally justifiable low-threshold service.

     

    Conclusion

    The question “Where is the school nurse?” is timely. This study shows that the national politicians’ intentions of early intervention, more prevention and easily accessible low-threshold services for children and adolescents in the school health services are not followed up by the municipalities. There is a considerable gap between the health authorities’ recommended minimum norm for school nurse staffing and the actual figures at most schools in Norway. This is particularly the case for primary schools where the effort according to the norm figures should have been the greatest. The result of the survey shows that children and adolescents receive very unequal school health services and that this is not justifiable. The staffing norm must be seen in relation to demographics and school size if the service is to be an equitable low-threshold service independently of where the students live.

     

    References

    1. Helsedirektoratet. Utviklingsstrategi for helsestasjons- og skolehelsetjenesten. 2010.

    2. Lovdata. Lov om kommunale helse- og omsorgstjenester. 24.06 2011 [helse- og omsorgstjenesteloven]. Available from: https://lovdata.no/dokument/NL/lov/2011-06-24-30 (Nedlastet 17.06.2015).

    3. Nortvedt MW, Jamtvedt G, Graverholt B, Nordheim LV, Reinar LM. Jobb kunnskapsbasert! En arbeidsbok. 4. ed: Akribe; 2012.

    4. Forskrift om kommunens helsefremmende og forebyggende arbeid i helsestasjons- og skolehelsetjenesten. (2003).

    5. Helse – og omsorgsdepartementet. Prop 90 L. Lov om kommuneale helse- og omsorgstjenester [helse- og omsorgstjenesteloven] (2010–2011).

    6. Helsetilsynet. Fylkeslegenes felles tilsyn med skolehelsetjenesten 2010. Available from: https://www.helsetilsynet.no/no/Tilsyn/Landsomfattende-tilsyn/Fylkeslegenes-felles-2000-skolehelsetjenesten.

    7. Oslo kommune, Helseetaten. Drøftingsnotat presentasjon av nøkkeltall for helsestasjons- og skolehelsetjenesten i Oslo til bruk i arbeidet med: effektiviseringsnettverk helsestasjons- og skolehelsetjenesten. 2014.

    8. KS. ASSS-nettverk for Helsestasjons- og skolehelsetjenesten. Vedlegg: statistikk/diagrammer. 2014.

    9. Fylkesmannen i Sør-Trøndelag. Kartlegging av ledelse i skolehelsetjenesten i Sør- Trøndelag. 2015.

    10. Kunnskapssenteret. Effekter av skolehelsetjenesten på barn- og unges helse og oppvekstvilkår. Systematisk oversikt 2010.

    11. Johnson KH, Bergren MD, Westbrook LO. The promise of standardized data collection: school health variables identified by states. J Sch Nurs. 2012;28(2): 95-107.

    12. NIBR. Den vanskelige samhandlingen. Evaluering av forvaltningsreformen i barnevernet. Rapport 25/2011.

    13. Baisch MJ, Lundeen SP, Murphy MK. Evidence-based research on the value of school nurses in an urban school system. J Sch Health. 2011;81(2):74–80.

    14. Wang LY, Vernon-Smiley M, Gapinski MA, Desisto M, Maughan E, Sheetz A. Cost-benefit study of school nursing services. JAMA Pediatr. 2014;168(7):642–8.

    15. Hill NJ, Hollis M. Teacher time spent on student health issues and school nurse presence. J Sch Nurs. 2012;28(3):181–6.

    16   Winland J, Shannon A. School staff´s satisfaction with school health services. The Journal of school nursing: the official publication of the National Association of School Nurses. 2004;20(2):101–6.

    17. Baltag V, Levi M. Organizational models of school health services in the WHO European Region. J Health Organ Manag. 2013;27(6).

    18. Telljohann SK, Price JH, Dake JA, Durgin J. Access to school health services: differences between full-time and part-time school nurses. The Journal of school nursing: the official publication of the National Association of School Nurses. 2004;20(3):176–81.

    19. Skog O-J. Å forklare sosiale fenomener. Gyldendal Akademisk 2004 s.72.

    20. Polit DF, Beck CT. Essentials of nursing reaserch, appraising evidence for nursing practice. 8 ed. Philadelphia: Wolters Kluwer/Lippincott Williams & Wilkins; 2014 s 93 og 162–163.

    21. Utdanningsdirektoratet. Grunnskolens informasjonssystem. Available from: https://gsi.udir.no/tallene.

    22. Statistisk sentralbyrå. Videregående opplæring og annen videregående utdanning: SSB; udatert. Available from: http://www.ssb.no/utdanning/statistikker/vgu

    23. Barneombudet. Helse på barns premisser. Barneombudets fagrapport 2013.

    24. Voksne for barn. Lære for livet. 2014.

    25. Helse– og omsorgsdepartementet. Stortingsmelding 34 Folkehelsemeldingen, God helse helles ansvar. 2012–2013.

    26. Helse – og omsrgsdepartementet. Stortingsmelding 19 Folkehelsemeldingen, Mestring og muligheter. 2014–2015.

    27. Helse – og omsrgsdepartementet Stortingsmelding 26 Fremtidens primærhelsetjeneste, Nærhet og helhet. 2014–2015.

    28. Forandringsfabrikken. Available from: http://www.forandringsfabrikken.no (Nedlastet 17.06.2015).

    29. Helmers A-KB, Dolonen KA. Helsesøstre slår alam. - Vi rekker ikke følge opp de som sliter. Sykepleien. 07.02.2013. Available from: https://sykepleien.no/2013/02/vi-rekker-ikke-folge-opp-de-som-sliter.

    30. Helmers A-KB, Dolonen KA. Ett minutt er ikke nok Sykepleien 13.03 2014. Available from: https://sykepleien.no/2014/03/ett-minutt-er-ikke-nok.

    31. Fylkesmannen I Akershus og Østfold. Fylkesrevisjonens kartlegging av de videregående skolene i Østfold. 2012.

    32. Folkehelseinstituttet. Dekningsstatistikk for barnevaksiner 2014. Available from: www.fhi.no/artikler/?id=114769.

    33. Folkehelseinstituttet. Ungdomsundersøkelser 2000–2004, 2008 og 2009. Available from: http://www.fhi.no/studier/regionale-helseundersokelser/ungdomsundersokelser-2000-2009.

    34. Folkehelseinstituttet. Folkehelseprofiler 2015. Available from: http://www.fhi.no/helsestatistikk/folkehelseprofiler/finn-profil.

    35. Lien L. Trenger noen som lytter. Sykepleien. 7/2011 (s. 72).

    36. Forebygging.no. LEON-prinsippet. Available from: http://www.forebygging.no/Ordbok/L-P/LEON-prinsippet.

    37. Store medisinske leksikon. LEON. Available from: https://sml.snl.no/helsetjeneste.

    38. Egge H. «Du er ikke alene». Samtalegrupper som helsefremmende tiltak for skilsmissebarn. En grounded theory studie. [Master]: Nordic School of Public Health, Göteborg. 2012.

    39. Kvarme LG, Helseth S, Sorum R, Luth-Hansen V, Haugland S, Natvig GK. The effect of a solution-focused approach to improve self-efficacy in socially withdrawn school children: a non-randomized controlled trial. International journal of nursing studies. 2010;47 (11): 1389-96.

    40. Kunnskapsdepartementet NOU 2015:2 Djupedalsutvalget. Å høre til – virkemidler for et trygt psykososialt skolemiljø.

    Where is the school nurse?

    There is a considerable gap between the health authorities’ recommended minimum norm for school nurse staffing and the actual figures at most schools in Norway.  

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    English
    Sammendrag

    Bakgrunn: Helsedirektoratet har utviklet anbefalte normtall for helsesøsterdekning i de ulike deltjenestene av helsestasjons- og skolehelsetjenesten. Det har hittil manglet data som gir oversikt over avstand til norm i barne-, ungdom- og videregående skole.

    Hensikt: Hensikten med denne studien var å kartlegge helsesøsterbemanningen på den enkelte skole i Norge og evaluere denne opp mot anbefalte normtall og tilstedeværelse. Ved å analysere forskjeller mellom skoletrinn, fylker, skolestørrelse og kommunestørrelse ønsket vi å evaluere om helsesøsterdekningen i skolehelsetjenesten er dimensjonert slik at elevene har et faglig forsvarlig lavterskeltilbud.

    Metode: Det ble gjennomført en tverrsnittstudie, ved hjelp av spørreskjema, til kommunene. Ikke-parametriske metoder ble brukt for å sammenligne helesøsterdekning opp mot skolestørrelse og kommunestørrelse. Kji-kvadrat tester ble brukt for å undersøke forskjeller mellom proporsjoner i ulike grupper.

    Resultat: Bare 1,4 prosent av landets skoler hadde helsesøster til stede hver dag. Antall helsesøstre i barneskolen må økes med 125 prosent for å nå normtall. For ungdomsskolen må økningen være 34,4 prosent og for videregående skole 21,1 prosent. Avstand til norm økte med kommunestørrelse og skolestørrelse

    Konklusjon: Skolehelsetjenesten er ikke bemannet i forhold til anbefalt norm for helsesøsterdekning. Tilbudet er ulikt i kommuner, bydeler og mellom skoler og kan ikke betegnes som et likeverdig lavterskeltilbud.

    Tre ungdomsskolejenter
  • Meaningful activities at nursing homes

    Introduksjon (en)

    Flere undersøkelser viser at beboere på sykehjem er fornøyd med fysisk pleie og omsorg, men savner meningsfulle dager med sosial kontakt og aktivitet (1, 2). For at beboerne skal oppleve aktivitetene som tilbys på sykehjemmet som meningsfulle, er det viktig å kartlegge hva beboerne selv er interessert i. I den grad beboerne blir spurt, blir beboere med demensdiagnose oftest ekskludert. Ved norske sykehjem regner en at cirka 80 prosent av beboerne har en demensdiagnose (3). Demens er en fellesbetegnelse for en gruppe hjernesykdommer som fortrinnsvis opptrer i høy alder. Symptomene på demens er hukommelsessvikt, sviktende handlingsevne, sviktende språkfunksjon, personlighetsendringer og endring i atferd (4). Dersom man utelater beboerne med kognitiv svikt, vil man kun få kartlagt interessen til en liten gruppe sykehjemsbeboere. Forskning på ansattes holdninger til sykehjemsbeboere med demens antyder at mange ansatte har liten tro på at denne gruppen har nytte og glede av å delta på aktiviteter (5). Det er lite forskning på hva personer med demens selv opplever som meningsfulle aktiviteter. Som regel blir det fokusert på de begrensningene en demensdiagnose naturlig bringer med seg. I denne undersøkelsen ønsket vi å inkludere alle beboere med språk og evne til å uttrykke seg, uavhengig av kognitiv funksjon.

     

    Offentlig politikk

    I Rundskriv om «Kvalitet i pleie og omsorgstjenester» (6), heter det at beboerne har krav på tilbud om varierte og tilpassete aktiviteter både inne og ute. Det er videre kommunens plikt å dekke den enkeltes behov for aktivitet i samarbeid med klienten. Ifølge Stortingsmeldinger (7, 8) påpekes det at den enkelte må få mulighet til å leve i en aktiv og meningsfylt tilværelse i fellesskap med andre. Man påpeker videre at mangel på aktivitet, sosiale og kulturelle forhold er noen av de største svakhetene ved dagens omsorgstilbud.

     

    Tidligere forskning

    Det har vært foretatt en del forskning på sammenhengen mellom fysisk aktivitet og forebygging og behandling av ulike sykdommer og tilstander, deriblant demens. Helbostad mfl. (9) antyder at aktivitet generelt og fysisk aktivitet spesielt, kan være gunstig for å forebygge utvikling av demens og hindre funksjonsnedsetning i forbindelse med demens. Oversiktsartiklene til Forbes mfl. (10) og Stern mfl. (11) fant ikke signifikante sammenhenger mellom deltakelse i fysisk aktivitet og forebygging av demens. De fant imidlertid at noen fysiske aktiviteter ga mer helsebringende effekt enn andre, som for eksempel hagearbeid, dansing, sykling og spaserturer (11). Phinney (12) viste i sin studie blant personer med demens, at det å være aktiv var den mest drivende kraften i livet. Forsk-ning på sammenhenger mellom aktivitet og helse blant eldre bør inkludere et bredt spekter av aktiviteter, både mentale, sosiale, fysiske og arbeids- og rekreasjonsrelaterte aspekter (12-14). Ifølge Vernoooij-Dassen (15) og Pinney mfl. (12) er det stort samsvar mellom aktiviteter som personer med demens opplever som meningsfulle og det andre voksne mennesker opplever som meningsfullt. Haugland (16) påpeker også at personer med kroniske lidelser er like individuelle som resten av befolkningen. Når det gjelder faktorer som må være til stede for god livskvalitet, er det lite som tyder på at det er vesentlige forskjeller mellom kronisk syke og befolkningen for øvrig. Sosiale relasjoner og fritidsaktiviteter oppgis som svært viktige. Flanagan (17) kopler også deltakelse i meningsfulle aktiviteter til menneskets opplevelse av livskvalitet. Vernoooij-Dassen (15) påpeker videre at aktivitetene oppleves meningsfulle ved at de gir glede og involvering, tilhørighet og autonomi og identitet. Det er imidlertid avgjørende at aktivitetene er tilpasset individets interesser for at de skal oppleves som meningsfulle (15, 18, 19). Viktigheten av å tilpasse aktiviteten til den enkeltes interesser støttes også av forskning i forhold til bruk av individualisert musikk (18). Hensikten med å gjennomføre undersøkelsen er å legge til rette for aktiviteter som beboerne selv ønsker å delta på.

    Forskningsspørsmålene i studien er som følger:

    Hvilke aktiviteter har beboerne interesse for å delta på?

    Hvilke aktiviteter tror de ansatte at beboerne har interesse for å delta på?

    Er det samsvar og ulikheter i svarene fra de to gruppene?

     

    Metode

    Studien hadde et tverrsnittsdesign hvor data ble samlet inn ved hjelp av spørreskjema. Et til beboerne og et til de ansatte. Beboerne ble spurt om hvilke aktiviteter de hadde interesse for å delta på. De ansatte ble spurt om hvilke aktiviteter de trodde beboerne på deres avdeling eller boenhet hadde interesse for å delta på. De alternative aktivitetene tok utgangspunkt i de aktivitetene som sykehjemmet tilbød på det aktuelle tidspunktet. Til sammen 17 ulike aktiviteter ble inkludert, disse ble delt opp og organisert i følgende tre kategorier: 1) Fellesaktiviteter, som stort sett foregår i sykehjemmets storstue: konserter, gudstjenester eller andakter, dans og bingo. 2) Gruppeaktiviteter, som foregår i boenhetene: håndarbeid, maling, baking, høytlesning/avislesing, dikt eller lesegruppe, hagearbeid, sang, bingo, trim. 3) Utflukter: spasertur, biltur, handletur, kulturarrangement. Det ble også spurt om interessen for å få besøk av en individuell besøksvenn eller samtalepartner. Svaralternativene på alle spørsmålene var ja eller nei. I tillegg ble bakgrunnsvariablene kjønn og alder registrert på beboernes spørreskjema. 

     

    Utvalg og setting

    Undersøkelsen ble gjennomført ved Løvåsen Undervisningssykehjem i Bergen, i perioden desember 2007 til og med januar 2008. Alle beboerne med språk og evne til å fullføre intervjuet ble inkludert. Av 16 avdelinger og boenheter ble 15 inkludert i studien. Rehabiliteringsavdelingen ble utelatt fordi den skiller seg vesentlig fra de andre, da den kun har beboere med rehabiliterings- og korttidsbehov. Ansatte som arbeidet dagtid på boenheten i 50 prosent stilling eller mer ble inkludert.

     

    Kartlegging

    Det ble foretatt et strukturert intervju av beboerne, med utgangspunkt i spørreskjemaet. Prosjektleder gjennomførte intervjuet og fylte ut skjemaet. Intervjuene ble foretatt på beboerrommet eller på et rolig sted i dagligstuen. Intervjuene varierte fra 10 til 45 minutter. Spørreskjema med følgebrev til de ansatte ble delt ut av bogruppeleder på hver bogruppe. Skjemaene var umerket og kunne ikke spores tilbake til respondenten. Utfylte skjema ble returnert til sykehjemmets resepsjon. 

     

    Etiske overveielser

    Institusjonsledelsen initierte og ønsket kartleggingen. Sykepleie-ansvarlig på avdelingene vurderte hvem av beboerne som var i stand til å gjennomføre intervjuet. Beboerne ble spurt om de ville delta og det ble presisert at det var helt frivillig. Beboernes navn ble ikke påført spørreskjemaet og skjemaene ble nummerert etter hvert som intervjuene ble gjennomført. Samtalene ble gjennomført når det passet beboerne. En beboerliste, som ble makulert i ettertid, ble brukt for å krysse av dem som deltok. Det er ikke mulig å identifisere den enkelte beboer i ettertid. Sekretariatet ved Regional komité for medisinsk og helsefaglig forsk-ningsetikk (REK) Helse Vest, vurderte prosjektet som ikke fremleggspliktig på grunn av marginale helseopplysninger i spørreskjemaet.

     

    Dataanalyser

    Analysene ble utført ved hjelp av SPSS versjon 18. Resultatene rapporteres i en krysstabell. For hver aktivitet oppgis det eksakte antall samt prosentvis fordeling av henholdsvis beboere og ansatte som har svart ja eller nei. For å teste om det er signifikante forskjeller i svarene mellom gruppene, ble det gjennomført kjikvadrattest og Fishers eksakte test (hvor det er fem eller færre observasjoner i en gruppe). Signifikansnivået ble satt til 0,05 (20).

     

    Resultater

    Deltakelse

    I undersøkelsesperioden var 157 beboere innlagt ved de aktuelle avdelingene eller boenhetene. Pleieansvarlige vurderte 54 beboere som ikke egnet til å delta på grunn av manglende språk eller alvorlig fysisk sykdom. Utvalget ble 103 personer, sju ønsket ikke å delta og sju falt fra på grunn av sykdom. 89 gjennomførte undersøkelsen. Det gir en svarprosent på 86. 72 kvinner og 17 menn deltok. Deltakernes alder varierte fra 66–101 år og gjennomsnittsalderen var 85 år (SD = 8,23).

    På undersøkelsestidspunktet utgjorde aktuelle deltakere blant ansatte 98 personer, 62 personer svarte på skjemaet. 11 av skjemaene ble forkastet på grunn av ufullstendig utfylling. 51 svar ble inkludert i analysen (52 prosent). 

     

     

    Fellesaktiviteter

    Resultatene viste at svært mange av beboerne var interesserte i å delta på fellesaktivitetene. Bortsett fra at ansatte vurderte deltakelse på konserter som mer interessant enn beboerne, samsvarte beboernes interesse for å delta i fellesaktiviteter med personalets vurdering eller oppfatning av deres interesser.

     

    Gruppeaktiviteter

    Over halvparten av beboerne var interessert i håndarbeid, baking, hagearbeid, sang, bingo og trim. Av de ansatte trodde over halvparten at beboerne var interessert i håndarbeid, baking, høytlesning, dikt eller lesegruppe, sang, bingo og trim. Høytlesning, diktlesning, sang, bingo og trim ble vurdert signifikant høyere av de ansatte enn av beboerne. Gruppene viste størst forskjell i forhold til interessen for høytlesning, hvor 94 prosent av de ansatte trodde at beboerne var interessert, mens kun 37 prosent av beboerne svarte at de var interessert. 77 prosent av de ansatte trodde at beboerne var interessert i dikt eller lesegruppe, mens 46 prosent av beboerne oppga interesse for dette. Alle de ansatte trodde at beboerne var interessert i sang, mens 72 prosent av beboerne oppga interesse. Både bingo og trim var aktiviteter de ansatte i svært stor grad trodde at beboerne var interessert i, men beboerne viste mindre interesse. Hagearbeid derimot ble vurdert signifikant høyere blant beboerne enn av de ansatte. 58 prosent av beboerne oppga at de var interessert i å delta i hagearbeid, mens 23 prosent av de ansatte trodde at beboerne var interessert i dette.

     

    Utflukter

    Aktivitetene spasertur og biltur ble vurdert høyt av begge gruppene. Handletur ble oppgitt av 53 prosent av beboerne og 58 prosent av de ansatte. Ansatte vurderte beboernes interesse for deltakelse i kulturaktivitet høyere enn beboerne selv gjorde.

     

    Individuell besøksvenn

    38 prosent av beboerne oppga interesse for en individuell besøksvenn, mens 94 prosent av de ansatte trodde at beboerne var interessert. Forskjellen er signifikant.

     

     

    Diskusjon

    Studien viste at beboerne i stor grad ønsket å delta på aktiviteter der de selv er aktive. De ansatte derimot anga i større grad aktiviteter der beboerne blir «underholdt» som mest interessante. Det kan tyde på at de ansatte tror at beboerne er interessert i «passive» aktiviteter. Funnene i undersøkelsen, samt tidligere forskning (1, 2) tyder på at sykehjemsbeboerne ønsker mer enn kun å få dekket elementære behov. Sykehjemsbeboere er i stor grad fornøyde med fysisk pleie og omsorg (1, 2). Undersøkelsen viste at beboerne var interessert i å delta på aktiviteter som ble arrangert på sykehjemmet, fortrinnsvis der de selv var aktive.

     

    Fellesaktiviteter

    Beboernes store interesse for fellesaktivitetene konserter, gudstjeneste, dans og basar kan tyde på at beboerne opplever disse aktivitetene som positive. Stern m.fl. (11) viser at aktiviteter som oppleves lystbetonte, som for eksempel dans, har signifikant helsebringende effekt. Vernoij-Dassen (15) påpeker at aktiviteter som gir gode opplevelser er like viktig for mennesker med demens som for andre mennesker. På den annen side påpeker Hauge (21) at det ikke nødvendigvis er sosial kontakt blant sykehjemsbeboere selv om de er på samme sted. Det er avhengig av at situasjonen er definert og helst at ansatte er til stede. Disse arrangementene er definert som et underholdningstilbud og det er oftest både ansatte og pårørende til stede. Fellesaktivitetene vurderes også av de ansatte som interessante for beboerne. I forhold til konserter var det imidlertid signifikante forskjeller mellom ansatte og beboernes svar. Hele 100 prosent av de ansatte trodde beboerne var interessert i konserter, mens 80 prosent av beboerne oppga interesse. En forklaring på at beboerne oppga mindre interesse enn de ansatte trodde, kan være at konserter er den av fellesaktivitetene der beboerne er tilhørere og deltar lite selv. I tillegg tilføyde noen av beboerne under intervjuet at de hadde problemer med hørselen på store arrangementer.

     

    Gruppeaktiviteter

    Funnene i undersøkelsen viste at beboerne var interessert i å delta på aktiviteter der de selv er aktive, som håndarbeid, baking, hagearbeid, sang, bingo og trim. De ansatte trodde også at beboerne var interessert i å delta på gruppeaktiviteter. Mange beboere oppga at de hadde interesse for hagearbeid (58 prosent), mens relativt få (23 prosent) av de ansatte trodde beboerne hadde denne interessen. Ifølge Stern m.fl. (11) er hagearbeid og spasertur eksempler på fysiske aktiviteter som gir signifikante helsefremmende effekter.

    Svært mange av de ansatte trodde at beboerne, var interessert i høytlesning fra for eksempel avisen og dikt eller lesegruppe, mens beboerne svarte at de ikke var interessert. Disse forskjellene var signifikante. Funnene kan tyde på at de ansatte overvurderte beboernes ønske om «å bli underholdt». De ansatte trodde også at sang, bingo og trim var mer interessant for beboerne enn hva beboerne selv oppga.

     

    Utflukter

    Funnene viste at beboerne i høy grad var interesserte i å komme seg ut på spasertur. Mange av beboerne uttrykte spontant under intervjuet: «Ja tenk å få komme seg ut i frisk luft.» Også de ansatte trodde at beboerne ønsker å komme ut. Beboernes ønske om å komme ut samsvarer godt med en Sintef-rapport (22) i forbindelse med nye sykehjemsmodeller. Denne viser at 90 prosent av beboerne (kun «mentalt klare» beboere deltok i undersøkelsen) likte å være ute, ble i bedre humør av å være ute og syntes at de kom seg for lite ut. I Sintefs undersøkelse hadde pårørende og ansatte liten tro på at beboerne likte å komme seg ut. I Norge og Skandinavia har vi en sterk kultur og tradisjon for friluftsliv (23). Det er ikke grunn til å tro at denne trangen forsvinner selv om man er blitt hjelpetrengende og bor på sykehjem. Forskriften om en verdig eldreomsorg (24) fastsetter at tjenestemottakere i eldreomsorgen skal ha; «et mest mulig normalt liv, med normal døgnrytme og adgang til å komme ut.» Funnene fra undersøkelsen støtter at dette er et område man trenger å fokusere mer på i eldreomsorgen. Interessen for kulturarrangementer er vurdert signifikant høyere blant de ansatte enn beboerne. Det støtter også funnene i forhold til felles- og gruppeaktiviteter at beboerne ønsker aktiviteter der de selv er aktive, mens de ansatte i større grad tror beboerne vil delta i «passive aktiviteter» eller bli «underholdt».

     

    Individuell besøksvenn

    I arbeidet med kvalitetsforbedringsprosjektet ved USH antok prosjektgruppen at det vil være et stort ønske om individuelle besøksvenner. Beboerne viser svak interesse for individuell besøksvenn. Til og med beboere som har lite besøk er skeptiske til fremmede. Den svake interessen for besøksvenner kan også forstås som Carstensen (25) viser, at med økt alder blir man mer selektiv i forhold til sosiale relasjoner og foretrekker etablerte relasjoner. Imidlertid trodde svært mange av de ansatte at beboerne ønsket en besøksvenn. Det kan forklares ut fra at de ansatte vurderer situasjonen i forhold til sine preferanser og har problemer med å se det fra den eldres synsvinkel. Når man ser at spasertur er den aktiviteten beboerne er mest interessert i, kan frivillige ses på som en potensiell ressurs for å realisere at beboerne får kommet mer ut. Utfordringen er å presentere denne muligheten på en måte som gjør det attraktivt for beboerne.

     

    Vil være aktive

    Er det forskjell på hvilke aktiviteter beboerne selv er interessert i og det de ansatte tror beboerne ønsker? I denne studien gir beboerne uttrykk for at de er interessert i å delta i aktiviteter, dette samsvarer med hva de ansatte tror. Beboerne oppgir at de er interessert i å delta i en rekke aktiviteter der de selv er aktive. Svarene fra de ansatte indikerer imidlertid at de tror at beboerne er interessert i aktiviteter der det er tilstrekkelig kun å være til stede. Kan grunnen være at de ansatte undervurderer beboernes evne og vilje til aktiv deltakelse i aktiviteter?

    Diagnoser og demensvurdering ble det ikke tatt hensyn til i forhold til utvalget i undersøkelsen. Med bakgrunn i kunnskap om den store forekomsten av demens på norske sykehjem (3), kan man anta at en stor andel av deltakerne har en demenssykdom. Hvorvidt dette påvirker svarenes gyldighet, kan man ikke si med sikkerhet. Under intervjuene svarte de fleste klart og konsist på spørsmål om hva de var interessert i eller ikke. På om de for eksempel var interessert i å delta i sang, svarte mange at det likte de svært godt og begynte gjerne spontant å synge. Andre svarte kontant at de ikke likte å synge og at de aldri hadde hatt sangstemme.

     

    Trenger støtte

    En holdning av lav forventning fra pleiepersonalets side til beboernes evne og vilje til deltakelse i aktiviteter kan muligens hindre dem i viktig livsutfoldelse. Mange eldre har lav selvfølelse. Forskning påpeker (26, 27) at sosial støtte kan være med å øke eldres selvfølelse og tiltro til seg selv. Forskning (5) viser at ansattes tiltro til mestringsevnene til personer med demens er relativt lav. Det kan forklares ut fra at symptomene på demens er hukommelsessvikt, sviktende handlingsevne, sviktende språkfunksjon, personlighetsendringer og endring i atferd. Det er klart at alder og sykdom kan begrense evnen til aktivitet. Dersom man fokuserer på nedsatt fysisk og mental helse, ser man på beboernes begrensninger i stedet for ressurser. Både de eldre selv og omgivelsene gjør sammenlikninger med yngre mennesker eller slik personen selv fungerte tidligere. Da er det lett å bli motløs og ikke se hva man klarer på tross av nedsatt kapasitet. Dersom man derimot leter etter personens ressurser og støtter beboerens deltakelse i aktiviteter som gir glede og involvering, kan man være med på å styrke personens følelse av å høre til og følelse av autonomi og egen identitet.

    Bandura (28) hevder at en følelse av egen mestring og en viss opplevelse av kontroll over egen hverdag fremmer helsestatus, og gjør at de eldre er mer sosialt aktive og føler seg lykkeligere. De eldre kan motta hjelp i forhold til funksjonelle begrensninger og kan understøttes i forhold til å delta i aktiviteter som de har spesiell interesse for. Slik kan sykepleieren gi aktiv omsorg. Man kan fremme troen på egen mestring ved sosial støtte og følelsen av at andre har tro på en (26, 27). På den annen side hevder både Bandura (28) og Vernooij-Dassen (15) at når aktiviteter først og fremst er tilpasset institusjonen og dens drift, kan det frata personen psykobiologisk velvære og således virke mot sin hensikt.

     

    Aktiv omsorg

    Stortingsmeldingen Mestring, muligheter og mening (7) vektlegger betydningen av aktiv omsorg. Aktiv omsorg må også innebære at man legger til rette for at beboerne får utøve aktiviteter som er viktige og meningsfulle for den enkelte, på en slik måte han eller hun selv ville ha gjort dersom han eller hun hadde hatt krefter til det. Dette er i tråd med Virginia Hendersons definisjon på sykepleie, som understreker at sykepleieren understøtter pasientens egne gjøremål (29).

    Sykepleieren blir en sentral aktør i å legge til rette for at pasientene kan delta i aktiviteter som er meningsfulle for den enkelte. Utfordringen er å forstå pasienten ut fra pasientens eget ståsted. I forhold til funnene i denne undersøkelsen er det en utfordring for de ansatte å legge til rette for at beboerne kan være med på hagearbeid og komme seg ut på spasertur. Dette kan betraktes som aktiv omsorg. På den annen side må man forstå at beboerne ikke er særlig interessert i å bli lest høyt for. Dette støttes også av Nightingale (30) « Når det gjelder høytlesning i sykeværelse, er det min erfaring at når syke mennesker er for dårlige til å lese på egen hånd, orker de sjelden å bli lest for» (s. 93).

    I denne undersøkelsen er det signifikante forskjeller i flere av svarene fra beboere og ansatte. Både beboere og de ansatte har fått de samme spørsmålene. Forholdene har likevel vært noe forskjellige og kan gi seg utslag i ulike svar. De ansatte fikk utlevert spørreskjema med informasjonsskriv. Beboerne fikk de samme spørsmålene, men de ble intervjuet av prosjektleder med utgangspunkt i spørreskjemaet. Dersom det var uklarheter, kunne det lettere oppklares i intervjusituasjonen. De ansatte hadde ikke samme muligheten til å avklare og måtte svare ut fra hvordan de selv forsto spørsmålene.

    På tross av signifikante ulikheter i en del av svarene er både ansatte og beboere opptatt av aktivitet. Denne undersøkelsen er foretatt på et undervisningssykehjem med stor vekt på utviklingsarbeid. Det er mulig at de ansatte er mer opptatt av aktiviteter av interesse for beboerne enn hva man vil finne på mange andre sykehjem. Funnene kan ikke uten videre generaliseres. En del av funnene kan likevel ha overføringsverdi til andre sykehjem og til eldreomsorgen generelt.

     

    Konklusjon

    Resultatene tyder på at man ved sykehjem i større grad bør kartlegge interessene til den enkelte beboer, og legge til rette for at beboerne kan delta i aktiviteter tilpasset egne interesser. Dette gjelder fortrinnsvis interesser der beboerne selv er aktive, for eksempel å delta i hagearbeid og spaserturer. Studien viser at beboerne svarer at de har interesse for å delta på aktiviteter, men den sier ikke noe om beboernes evne og vilje til faktisk å gjennomføre de aktivitetene de ønsker. I videre forskning vil jeg anbefale studier der man tester ut samsvaret mellom hva brukerne svarer og det de ansatte mener den enkelte beboer ønsker. I den forbindelse kunne det vært interessant å inkludere bakgrunnsinformasjon om de ansatte. For eksempel alder, kjønn, utdanning, hvor lenge de hadde arbeidet ved institusjonen og liknende. Det kan gjøre det mulig å vurdere om de ulike gruppene av ansatte vurderer beboernes interesser ulikt. Videre bør man undersøke ulike former for aktiviteter og systematisk evaluerer om sykehjemsbeboerne faktisk har evne og vilje til å gjennomføre aktivitetene. I tillegg ville det være ønskelig å undersøke om individtilpasset aktivitet øker trivsel og livskvalitet for sykehjemsbeboere.

     

    Referanser

    1. Røssland A. Behov for hjelp, mulighet til selvbestemmelse og tilfredshed med sykehjemmet: en kartleggingsstudie blant 77 pasienter ved to av sykehjemmene tilknyttet Undervisningssykehjemprosjektet i Norge. Bergen. 2001.

    2. Helsetilsynet. Pleie- og omsorgstjenesten i kommunene: tjenestemottakere, hjelpebehov og tilbud. Oslo.2003.

    3. Engedal K, Haugen PK, Brækhus A. Demens: fakta og utfordringer : en lærebok. Aldring og helse, Tønsberg. 2009.

    4. Brækhus A. Hva er demens? Aldring og helse, Tønsberg. 2009.

    5. Kada S, Nygaard HA, Mukesh BN, Geitung JT. Staff attitudes towards institutionalised dementia residents. J Clin Nurs. 2009;18:2383-92.

    6. Sosial- og helsedepartementet. Kvalitet i pleie- og omsorgstjenestene. Oslo.1997.

    7. Det kongelige helse- og omsorgsdepartement. Mestring, muligheter og mening: framtidas omsorgsutfordringer. Oslo 2006.

    8. Kultur- og kirkedepartementet. Frivillighet for alle. Oslo. 2007.

    9. Bahr R. Aktivitetshåndboken: fysisk aktivitet i forebygging og behandling. Helsedirektoratet, Oslo. 2009.

    10. Forbes D, Forbes S, Morgan DG, Markle-Reid M, Wood J, Culum I. Physical activity programs for persons with dementia. Cochrane Database Syst Rev. 2008(3):CD006489.

    11. Stern C, Konno R. Physical leisure activities and their role in preventing dementia: a systematic review. Int J Evid Based Healthc. 2009;7:270-82.

    12. Phinney A, Chaudhury H, O›Connor DL. Doing as much as I can do: the meaning of activity for people with dementia. Aging Ment Health. 2007;11:384-93.

    13. Leung GT, Fung AW, Tam CW, Lui VW, Chiu HF, Chan WM, et al. Examining the association between participation in late-life leisure activities and cognitive function in community-dwelling elderly Chinese in Hong Kong. Int Psychogeriatr. 2010;22:2-13.

    14. Paillard-Borg S, Fratiglioni L, Winblad B, Wang HX. Leisure activities in late life in relation to dementia risk: principal component analysis. Dement Geriatr Cogn Disord. 2009;28:136-44.

    15. Vernooij-Dassen M. Meaningful activities for people with dementia. Aging Ment Health. 2007;11:359-60.

    16. Haugland BØ. Mestringsressurser og helsestatus: en empirisk undersøkelse av personer med revmatorid artritt. Bergen. 1995.

    17. Flanagan JC. Measurement of quality of life: current state of the art. Arch Phys Med Rehabil. 1982;63:56-9.

    18. Bragstad L, Kirkevold M. Individualisert musikk for personer med demens. Sykepleien Forskning. 2010;5:8.

    19. Vossius C, Testad I, Skævesland R. Allsang, bingo og gudstjenester passer ikke for våre beboere. Sykepleien. 2009;97(09):2.

    20. Polit DF, Beck CT. Nursing research: generating and assessing evidence for nursing practice. Wolters Kluwer Health, Philadelphia. 2012.

    21. Hauge S. Jo mere vi er sammen, jo gladere vi blir?: ein feltmetodisk studie av sjukeheimen som heim. Unipub., Oslo.2004.

    22. Høyland K. Ny sykehjemsmodell, et bedre tilbud: erfaringer fra tre nye sykehjem. SINTEF, Trondheim. 2001.

    23. Lagerstrøm D. Friluftsliv: ein nordischer Weg zur Bewegung und Bewegungskultur? Friluftsliv: Entwicklung, Bedeutung und Perspektive. Meyer & Meyer Verlag, Aachen. 2007 (pp 117-33).

    24. Lovdata. Forskrift om en verdig eldreomsorg. 11 des 2010; nr.12 (Verdighetsgarantien). Tilgjengelig fra:: http://www.lovdata.no/for/sf/ho/xo-20101112-1426.html. (Nedlastet 23.09.2011).

    25. Carstensen LL. Motivation for social contact across the life span: a theory of socioemotional selectivity. Nebr Symp Motiv. 1992;40:209-54.

    26. Drageset J, Eide GE, Nygaard HA, Bondevik M, Nortvedt MW, Natvig GK. The impact of social support and sense of coherence on health-related quality of life among nursing home residents--a questionnaire survey in Bergen, Norway. Int J Nurs Stud. 2009;46:65-75.

    27. Birkeland A, Natvig GK. Coping with ageing and failing health: a qualitative study among elderly living alone. Int J Nurs Pract. 2009;15:257-64.

    28. Bandura A. Self-efficacy: the exercise of control. Freeman, New York. 1997.

    29. Kirkevold M. Sykepleieteorier: analyse og evaluering. Ad notam Gyldendal, Oslo. 1998.

    30. Nightingale F, Skretkowicz V. Notater om sykepleie. Universitetsforl., Oslo. 1997.

    The study shows that nursing home residents largely wish to participate in activities where they are active.

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    Sammendrag

    Meaningful activities at the nursing home

    Background:

    The government emphasizes the importance of culture, activities and well-being as essential and basic elements of comprehensive care offerings for residents of nursing homes. Lack of cultural activities is one of the biggest weaknesses of the current care services.

     

    Objective:

    To identify what activities in which the nursing home residents want to participate during their leisure time. In what activities do the employees think that the residents are interested? Additionally, it is interesting to compare the responses from the groups for conformity and differences.

     

    Method:

    A cross-sectional study. A questionnaire survey was conducted with nursing home residents and employees.  All residents with language and ability to complete the interview were included.

     

    Results:

    Residents rated activities in which they were active. The staff believed that residents were interested in activities in which the staff was active. The difference between the groups is significant concerning several activities. Eighty-nine of 103 (86%) residents and 51 of 98 (52%) employees completed the survey.

     

    Conclusion: 

    The findings suggest that staff do not sufficiently know the residents’ wants and needs, or that they underestimate the residents’ ability and willingness to be active.

     

    Keywords:

    questionnaire survey, nursing homes, user interaction, coping, dementia

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